It’s hard to believe that it has been almost a year since I blogged. I’ve thought about it many times, but each time it just seemed to be a bad time. 2020 is full of so much emotion and negative energy that I just didn’t want to put more of that into the world. But life is going ok, and we are thankful for our health and home. So what have we been up to this year?
We were blessed with Lexi’s Make A Wish Trip in January. Such a blessing to have been able to do that right before COVID. We were able to swim with dolphins, kayak, and play with sea lions. Everyone stayed healthy and we had a wonderful trip as a family. I’ve not talked a lot about it since we first got back, because the world became a complicated place soon after.
With Lexi’s Cystic Fibroses we’ve been extremely careful in all areas this year. It was the first week of March when her nurse called and advised us that it was time to keep her home. Our family has mostly quarantined since that call. We have a tight little quarantine circle that we have continued to share meals with, and we were able to escape for a trip to the lake in June. Lexi turned 17 this summer and Brooklyn turned 15. Everyone continues to do online and homebound school. Our Cystic Fibrosis clinic recommends that all CF kids and their siblings do school from home this school year. Not a big change for us since they were already doing this pre-covid.
We hope that everyone is doing well. Like many of you we know people who have had covid, but thankfully no one that has passed away. Our prayers are with all of those families who have lost someone. We know many people who have been impacted financially this year, and are grateful that Adam and I are both working.
Lexi was granted the opportunity to explore essential oils this summer, and we’ve been quietly working with a Young Living Sponsor. Lexi has been interested in learning more about using oils when she can to help her feel better physically and emotionally. Adam and I are pushing Lexi to explore what she wants to do after high school. Her health will take her on an untraditional path. In the last few months we’ve built a small business online, and now have 6 consultants working with us, and a sponsor supportive our our unique situation. We’ve told Lexi that if she contributes to managing the business the income earned will be hers. We hope this will motivate her to see that hard work can lead to reward. This is the first time I’ve talked about this, because we didn’t want friends and family to feel we were pushing a business on them. This weekend we began working on some social media accounts and will become more public in the next few months. Its hard knowing what direction to push your child when they have a medical condition. Lexi has spent several days this week in bed not feeling well. Most jobs won’t be accepting of those challenges.
So our lives do continue to be influenced by illness, but I would say now more then ever it doesn’t define us. We’ve built a good life around chronic illness. I think that has helped us get through 2020. Other then just a few bad days, quarantine and all that goes with it hasn’t been too terrible. Early on Adam and I decided it was about what we were protecting and not what we were giving up. That simple mindset shift really has made a difference in how we have handled the last eight months. Now don’t get me wrong a dinner and a movie would be a dream come true. We just know it’s not realistic and are prepared for a long winter at home.
I don’t know when I will blog again. Maybe tomorrow or maybe 2020. With Covid and Politics this isn’t the best time to be sharing what your thinking. Thank you for your continued support. Thank you for continuing to come to our blog and check on us. We are doing well. Lexi has clinic in December and I’ll try to do a post on CF and Covid then.