A lot of what I write about is our family. Lexi’s cystic fibrosis was really the catalyst for us sharing. You won’t often hear from Lexi. She likes that I share (we never share anything without the girls ok), but isn’t the writing/talking kind of girl. So I thought today I would share a little about Lexi.
Lexi is 16. She isn’t defined by her illnesses, but the impact her entire life. So while this isn’t a post about illness, here is a brief list of what impacts her.
- Cystic Fibrosis
- Eosinophilic Esophagitis
- Gastrointestinal Dysmotility
- Normocytic Anemia
- Vocal Cord Dysfunction
- Acute Exacerbation of Asthma – Cough Variant
- Gastroesophagel Reflux
- Chronic Pain Disorder (Epigastric, Periumbilical, generalized abdomen)
- ADD and Anxiety
Now that we have that out of the way, let’s meet Lexi. I caution you. She’s a girl of few words.
What are your favorite things… Music, and my dog Angel.
Why do you love your dog… Shes perfect for me. She is my temperament.
Are you sad you don’t go to traditional high school… Not really. I didn’t enjoy it. I was too miserable. I never got to really experience it. I was home more than I was there.
Is there anything you feel like you miss out on… Not really. I don’t talk to people. I don’t like texting. I feel weird talking on the phone. I don’t share things.
What makes you happy… reading, videos, music, my dog
If you could have as many dogs as you wanted, what would you have… 2 boxers and 2 shih tzus
If you could meet anyone, who would you meet and why… Nate Buzolic (actor). Because he is in tune with his faith, and travels the world. I think that’s cool.
If you could travel anywhere, where would it be… Greece, because I like mythology and their culture. Or London, because I would like to visit the castles. Or Egypt , because of the pyramids, but I can’t go there because of the dust.
If you could live anywhere, where would you live… Hawaii, because it’s Hawaii. Or Paris, because it is beautiful. Or New Orleans, because it’s so lively. There are so many places…
If you could drive any car what would it be… Black Chevy Camero
Favorite book… The Bond Series
Favorite song… Come To Brazil
Favorite Band… Why Don’t We
Favorite Artist… Madison Beer. Julia Michaels
Favorite Superhero… Captain America, THOR, Spider-Man, and you can’t forget Superman.
Favorite TV shows… Supernatural, Originals, Vampire Diaries, Expedition Unknown, Nate and Jeremiah, Stitchers, Good Omens, Gifted, Kindred Spirits
Favorite Movies… Anything Avengers, Maximum Ride, The Covenant, 2017 Power Rangers, 2013 Romeo and Juliet, maze Runners
Favorite possession… Marshmallow. (It’s a purple bunny that Lexi got when she was three. She broke her arm, and her great aunt mailed it from Indiana. It’s been to every surgery, procedure, and hospitalization with her.)
Favorite Holiday… Christmas, Thanksgiving, anytime I get to see my cousins.
Why do you like to go camping… it is nice to get away from everything.
What do you want to do when you get older… Your guess is as good as mine.
So that’s our girl. Just your typical, sassy, music loving, supernatural watching, teenager. Her story continues to be written, and she’s still trying to find her way.
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