Sandy Klein

Life is too short to wake up in the morning with regrets, so love the people who treat you right, forget about the ones who don't, and believe that everything happens for a reason. If you get a chance, take it. If it changes your life, let it. Nobody said life would be easy, they just promised it would be worth it. – Harvey Mackay

It’s Friday! Movie Night? Family night? Date night? How about a real tear jerker…

Our family loved the movie Five Feet Apart.  I thought it did a really good job of raising awareness of what the reality can be, and how bad it can get.  Of course cystic fibrosis is a spectrum type disease.  Some people will be sicker then others.  Some lifetimes will be long and some lifetimes will be short.  It depends on several different things.  From which mutations you have, what infections you get, and just plain good or bad luck.

That’s why such a strong emphasis was put on treatment regiment.  That can make the entire difference between a good life with cystic fibrosis, and a shorter life with cystic fibrosis.  It’s also why CF patients go to clinic every 3 months, more often if needed, and occasionally into the hospital for IV tune ups.  In the movie they talked about how CF patients grow infections in their mucus, and how one person’s infections can be deadly to another person.  Because of this every time a CF patient goes to clinic they cough all kinds of mucus into a cup, it goes to a lab, and the lab sees what grows.  If it is good news, nothing is growing, they send us a message through our portal.  If something is growing but not scary, another message through the portal along with a new prescription called in.  If it’s bad the DOCTOR CALLS.  Doctor calls are the worst calls, and then you probably are going to be getting admitted for IVs.

I’ve heard some complaints about the dramatization of the love story, not enough focus on this or that, and how some things were left out.  My answer to that is that it wasn’t a documentary.  I believe the movie did an amazing job of raising awareness  It will give millions of people a glimpse into cystic fibrosis, and an appreciation of what these patients go through.  They had to give it a good storyline.  They had to make you fall in love with the characters.  This is what makes you remember the movie.  It’s what makes you hurt for the characters.

You are never going to fully understand what someone goes through with a chronic illness, and that’s ok.  Having a glimpse into reality builds compassion.  The movie gives all Lexi’s friends a better idea of the things she goes through, and why she has to take care of herself.  Why, for her, not going to school in person has been the best choice.  That’s really what we all want right?  People to understand us and accept us.  That’s what I want for my girls.

So two thumbs up everyone.  Go see Five Feet Apart.  Enjoy it as a movie, and use it as a tool for growth and understanding.


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