Let’s talk about humidifiers.
Lexi’s doctor says, “Cystic Fibrosis bacteria breeds in moisture. Stay away from humidifier, misters, etc.”
Brooklyn’s doctor says, “Her sinuses are impacted. She needs a nightly humidifier. I know her sister has lung complications from CF. You’ll just need to weigh the risks.”
So what do we do? We made the decision as parents that having a humidifier on every night, with a shared bedroom wall, was too much risk. It isn’t fair, but we had to weigh the risk. Implementing nasal rinses, vaseline, and nasal steroids for Brooklyn. To reduce the risk of pseudomonas for Lexi.
But, and life always gives you a complication, now Brooklyn has a full sinus infection. Beyond her chronic nasal mucus, scabs, nose bleeds, she has a full blown infection. She can’t have any antibiotics right now. The doctors are trying to have her off all antibiotics for 60 days, because she’s been on so many the past year. So how can we make her feel better?
Back to the damn humidifier. There really is nothing else. So the girls have been separated to different ends of the house. Which needed to happen anyway so Lexi wouldn’t get sick. Brooklyn has her humidifier, which will be bleached and cleaned everyday. Trying to be the best possible parents to both girls, when their needs are conflicting right now.