The Klein's

Life is too short to wake up in the morning with regrets, so love the people who treat you right, forget about the ones who don't, and believe that everything happens for a reason. If you get a chance, take it. If it changes your life, let it. Nobody said life would be easy, they just promised it would be worth it. – Harvey Mackay

https://youtu.be/Wr_zOYEbLKY

So there is a new movie coming out that is causing a lot of excitement in Cystic Fibrosis land. It’s also causing a lot of excitement in our house.

We are lucky. Lexi is the only kid at her high school with CF. That can change at anytime, but for now we are going to be thankful. Did you know people with CF are isolated from one another? Cancer kids, asthma kids, diabetic kids. They have group therapy and summer camps. They deserve it! People need to know others understand what they are going through. Cystic fibrosis patients, well never shall two share the same oxygen. At least that’s the recommendation.

http://www.cff.org/Life-With-CF/Caring-for-a-Child-With-CF/Working-With-Your-Childs-School/When-There-s-More-Than-One-Person-With-CF-in-the-Same-School/

There is even a secret signal at the hospital to recognize fellow CF patients. Stay off each other’s elevator, See the just breathe ID? Translation: This person has CF.

My instagram feed has exploded with opinions from the CF community on if it’s too risky to see this movie in a theater. How many people with CF might be in the theater? What’s the chance you might unknowingly sit by another person with CF? One recommendation (kind of smart really) is to bring a small glow stick if you have CF. So you know the distance you need between each other.

Me. As a parent I think this is a wonderful opportunity to raise awareness. Gain a better understanding of how this isolation affects CF patients. Especially teens. Being a teenager is hard enough. I want everyone we know to see this movie.

So yes I’ll take my daughter to see it, understanding there will be a higher risk than normal of interactions with other CF patients. I’ll have her wear her mask. We will go to a reserved seating theater. Will take a few extra precautions and wipe down the armrests. We will put her in the top row and create a bubble of friends and family around her. I want to raise her to be smart, and live life. The world is full of grocery stores, airports, and all kinds of places full of germs. So live your best life, but heavens child don’t kiss a boy with CF!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.

%d bloggers like this: